Welcome to the International Still’s Disease Information Center
Due to leadership illness, in September 2017 the International Still’s Disease Foundation, Inc. (ISDF) officially dissolved and this website is maintained to house the information they provided.
View ISDF dissolution letter to the Still’s community, written by Patricia L. Boerner, former President, and Carole Himes, former CEO
What is Still’s Disease?
Still’s disease is a rare inflammatory disorder that affects the entire body (systemic disease). The cause of the disorder is unknown (idiopathic). It is characterized by episodes of high, spiking fevers, an evanescent (transient) pink or salmon-colored rash, fatigue, joint pain, muscle pain, a sore throat and other symptoms associated with systemic inflammatory disease. Still’s disease was first described in children, but it is now known to occur, much less commonly, in adults (in whom it is referred to as Adult-onset Still’s disease, AOSD). Learn more about Still’s Disease.
The International Still’s Disease Information Center is currently preserved information from the former International Still’s Disease Foundation. In 2020, we hope to raise funds to join forces with all nonprofits around the world who advocate for Still’s, then update the information with current resources and information.
Why the Dragon
With Still’s disease, there are daily fevers which can exceed 104°. When looking for a symbol to represent Still’s disease the founding members felt the fire-breathing Dragon best represented these daily high fevers. Those with Still’s fight to find the medications that will put their Still’s into remission and tame the fires of this symbolic Dragon forever.