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Welcome to the International

Still’s Disease Information Center

Due to leadership illness, on September 7th, 2017 – in honor of Still’s Disease Awareness Day – the International Still’s Disease Foundation, Inc. (ISDF) will officially dissolve and all properties, including the website and social media groups, will transfer to IFAAInternational Foundation for Autoimmune & Autoinflammatory Arthritis, an international 501c3 nonprofit.  You can learn more about IFAA at www.AIArthritis.org  Nonprofit ID: 27-1214308

 

View ISDF dissolution letter to the Still’s community, written by Patricia L. Boerner, former President, and Carole Himes, former CEO

 

 

 

 

 

 

What is Still’s Disease?

Still’s disease is a rare inflammatory disorder that affects the entire body (systemic disease). The cause of the disorder is unknown (idiopathic). It is characterized by episodes of high, spiking fevers, an evanescent (transient) pink or salmon-colored rash (view pictures of the Still’s rash), fatigue, joint pain, muscle pain, a sore throat and other symptoms associated with systemic inflammatory disease. Still’s disease was first described in children, but it is now known to occur, much less commonly, in adults (in whom it is referred to as Adult-onset Still’s disease, AOSD).  Learn more about Still’s Disease.

 

Mission 

Formerly the International Still’s Disease Foundation, Inc. (ISDF), the International Still’s Disease Information Center will continue to provide resources for those living with this disease.  Additionally, all resources will be managed under the International Foundation for Autoimmune and Autoinflammatory Arthritis.  This includes:

  • Provide support to those who live with Still’s disease.
  • Encourage and facilitate communication between people living with and those impacted by Still’s Disease.
  • Provide up-to-date information on Still’s disease research, treatments and related studies to those with the disease, their families, and healthcare professionals.
  • Increase general awareness of Still’s disease.

Why the Dragon

With Still’s disease, there are daily fevers which can exceed 104°. When looking for a symbol to represent Still’s disease the founding members felt the fire-breathing Dragon best represented these daily high fevers. Those with Still’s fight to find the medications that will put their Still’s into remission and tame the fires of this symbolic Dragon forever.

 

 



Donate to the International Foundation for Autoimmune & Autoinflammatory Arthritis, the new home of the former International Still’s Disease Foundation

Let's put the Dragon to sleep!

IFAA & the National Data Bank for Rheumatic Diseases have joined forces to further Still's research. Join now!

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