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Welcome to the International

Still’s Disease Information Center

 Due to leadership illness, in September 2017 the International Still’s Disease Foundation, Inc. (ISDF) officially dissolved and all properties, including the website and social media groups, were transferred to the IFAAInternational Foundation for Autoimmune & Autoinflammatory Arthritis, who will become a new voice for the Still’s community.

View ISDF dissolution letter to the Still’s community, written by Patricia L. Boerner, former President, and Carole Himes, former CEO

“IFAA is an international nonprofit established by patients for patients.  We understand the most pressing issues in the community and work hard to solve them.  We are truly honored to have been bestowed this honor to represent the Still’s community.” – Tiffany Westrich-Robertson, CEO

You can learn more about IFAA at www.AIArthritis.org  Nonprofit ID: 27-1214308

 

 

 

What is Still’s Disease?

Still’s disease is a rare inflammatory disorder that affects the entire body (systemic disease). The cause of the disorder is unknown (idiopathic). It is characterized by episodes of high, spiking fevers, an evanescent (transient) pink or salmon-colored rash (view pictures of the Still’s rash), fatigue, joint pain, muscle pain, a sore throat and other symptoms associated with systemic inflammatory disease. Still’s disease was first described in children, but it is now known to occur, much less commonly, in adults (in whom it is referred to as Adult-onset Still’s disease, AOSD).  Learn more about Still’s Disease.

Purpose

The International Still’s Disease Information Center will serve as a resource for those looking for more information about Still’s disease.  Additionally, this site will aim to:

  • Provide up-to-date information on Still’s disease research, treatments and related studies to those with the disease, their families, and healthcare professionals.
  • Increase general awareness of Still’s disease.
  • Encourage and facilitate communication between people living with and those impacted by Still’s Disease.

Why the Dragon

With Still’s disease, there are daily fevers which can exceed 104°. When looking for a symbol to represent Still’s disease the founding members felt the fire-breathing Dragon best represented these daily high fevers. Those with Still’s fight to find the medications that will put their Still’s into remission and tame the fires of this symbolic Dragon forever.

#DragonSlayer



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IFAA & the National Data Bank for Rheumatic Diseases have joined forces to further Still's research. Join now!

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