Member Profiles

Susan Matera a/k/a Sue #2

e-mail address cjlabbe01@snet.net

location: 240 Kenwood Estates

Griswold, CT 06351

Birthday: June 29th

Year of Onset of Stills or diagnosis: I think the

onset started around winter of 1995

Diagnosis: Winter of 2000

Other Health Problems: Fibromyligia

Meds: currently I am taking prednisone,

Zoloft, colchicine, celebrex, antitriptylene

Surgeries due to Stills: I haven't had

any surgeries after being diagnosed, but I

feel that my hysterectomy and 12 bladder

surgeries have triggered off my Stills.

Occupation: I am an owner and partner in

a family business. We own a small shopping

center in Norwich, CT and we have a large

Retail store. I have worked with my father

for 22 years and I wouldn't change it for

anything.

Family: I have two incredible parents,

Joe & Lois. They support me very much

and they are always there for me. I couldn't

be blessed with better parents. I also have

a brother named Michael who lives near me

as well. As for my family..I have three

beautiful boys..Joshua, Zachary and King

Kong...our Great Dane! My boys are very

supportive and understanding of my Stills.

Hobbies: I think when I was younger, I had

more hobbies, and I felt better. I used to

ride horses all the time and grew up with them.

I miss it very much, but my Stills prevents me

from riding. I love to garden or just work in

my yard. The neighborhood calls me

"THE LAWN RANGER". I also like my quiet

times. I like to walk and just enjoy quiet

evenings at home with my children. Sunday

is a "family" day for me and it's my favorite

day of the week.

Date of Onset: Diagnosed finally with ASOD late October 2001, but suspected onset is much eartlier

MAJOR: Adult Stills Disease, Diabetes, Diverticuli disease, Fibromyalgia, Krukenburg Spindle Syndrome, Migraines, Necrobiosis Lipoidica, Neuropathy, Empty Cella Syndrome, Splenomengaly, Uterine Fibroids, Valvular Heart Disease

MINOR: Astigmatism, Carpal Tunnel Syndrome, Cat Scratch Fever (resolved), Cytomeglavirus, Disbiosis, Epicondilitis (Tennis Elbow), Epstein Barr Syndrome (Resolved) Fibrocystic Breast Disease, Hyatal Hernia, Kidney / Liver stress, Tendonitis, TMJ.

Persisting Symptoms: Chronic Fatigue, Fevers over 100* daily, daily major headaches, muscle joint and body pain, swollen glands (5 years and counting), difficulty sleeping, crashing endocrine system, and acute environmental sensitivities.

(Boy! THAT was depressing!!! Majority of illnesses diagnosed this year, and in alphabetical order)

Current Medications: Avandia, Prandin, Trazadone, Salsalate, Prednisone, Methotrexate, Homocysteine Balance (which includes B vitamins and 1MG of Folic Acid), Cal Mag Citrate, Vitamin D, and lots of Chinese Medicinal Herbs most would not identify with, but email me and I will give you more information.

Occupation: By trade- Internet Administrator and Marketing Research. Currently unemployed (as of 12/01/01)

Family: Married 02/14/87 to James J Robinson, a wonderful, kind, supportive man. I have 3 birth children. Amber LaShondra – Born 05/04/1977, Evan Gabriel – Born 03/30/84 and Kamari AnNisha – Born 12/29/89. Amber made us Grandparents on 08/01/01 to a baby girl – Macy Jay. She was named after her father, Matthew Jay. (Macy means “from Matthews Estate”) I have had 3 foster children in addition to my own, Eric, Amanda and Matthew (different Matthew than the son in law) I have 13 siblings, most of which live in the Eastern part of the country. I was born in WV and raised all over the USA.

Favorite Activities: I like writing, arts and crafts, a good movie or book, music, family time and helping others. I also like photography, and am a makeup artist. (I do faces! *Smile*) I am building a web site called … (oops! Can’t tell you, its not ready yet!)