Member Profiles: F
Christina Foster
Email: greywolf@frontiernet.net
Location: Otisville, NY (about 70 miles North of NYC)
Birthdate: June 10, 1970
Date of Onset/Diagnosis: 11/97
Other Health Conditions: RA, colitis, diverticulosis, high blood pressure, vertigo
Surgeris due to Still's: none (yet )
Current Meds: Enbrel, Medrol, prednisone, plaquenil, tenormin, and calcium
Occupation: Administrative/Management in Local Service Provisioning for local telecommunications company.
Family: 2 sons, Sean & Nicky. 2 cats Snickers and Missy
Favorite Activities: arts & crafts, painting, reading. I used to be in the volunteer ambulance corps as an EMT (can't do that anymore), but I still like to keep up on medical knowledge/first aid/etc.
Joshua Elijah Forde
Email: gmckin@gte.net
Location: Maui, Hawaii, USA
Birthdate: April 5th, 1989
Year of Diagnosis or Onset: May, 1995
Other diseases/health problems: as a result of long term prednisone use, Josh has osteoporosis and growth retardation.
Surgeries as a result of Still's: None yet. Hopefully, none will be needed!
Current Medications: prednisone(30mgs daily), hydroxychloroquine(100/200alternating days), methotrexate(15mgs weekly), indomethacin(25mgs twice per day), cytotec(100mcgs twice per day), folic acid(1mg daily, except on day of MTX dose), miacalcin(1 squirt nasal spray per day), and calcium supplements(500mgs daily). Sometimes iron, too.
Occupation: straight A student, soon finishing 4th grade.
Family: lives with his Mom Georgina and 8 year old Sister Kayla, and their pet birds, guinea pig, geckoes and lots of tropical fish. Visits with Dad.
Hobbies or Favorite Activities: drawing Japanese anime-type characters, playing video games, swimming and enjoying time at the beach, playing ukulele, marbles, computer games, caring for his pets, spending time with friends, browsing at the mall
Simon Fox
Email: Foxhens@aol.com
Location: Goring-on-Thames, Oxon, UK
Birthdate: April 18, 1964
Year of Diagnosis/Onset: 1997
Current Medications: MTX plus Prednisone at present for flare, Folic acid, calcium tablets
Occupation: Publishing Manager, London
Family: Wife, two children, Oliver 8, Emily 10, West Highland White Terrier - Millie
Favorite Activities: All sports (Ha Ha)
Message:
Simon's problems came on gradually starting with we when think back with flu like symptons.
He was given penicillin and had a severe allergic reaction at Christmas 97. He had the night sweats, rash etc.
He recovered but was left with a strange "bent finger". Was referred to a rheumatoligst who did lots of tests
to rule out certain sinister "things" and came up with "Sarcoidosis". Progressed on for about four years with
this diagnosis, he got gradually worsening symptons of joint pain and swelling - mainly in his feet, knees,
wrists but mainly feet. He started with NSAIDS, then onto pred going higher and higher until on 60mg a day.
Kept questioning diagnosis researching on the net but only could find Lupus and RA - nothing seemed to quite "fit".
Consultant kept doing biopsies of the rash, lung X rays etc. Then put onto Azapirone no good - adverse reactions.
Stopped all meds and had a flare. Referred to a Emeritus Prof of Rheumatology at the Brompton Hospital, London.
He then ran load of tests and came up with AOSD. Started on MTX and has done quite well up UNTIL NOW.
Flare started in Feb - bloods tests showed elevated CRP and ESR but nothing actioned - consultants appoint
was postponed. Subsequently sustained substantial flair, saw consultant and currently on 30mg pred to
try and calm things down. Back to consultant this week. Will hopefully have further blood tests and monitor progress.
We wonder why this happened to us as so many of you do too no doubt. Before this thing came out of nowhere
Simon was a very active fit healthy sports mad type of person. We take one day at a time at present.
Heather Ann Fultz
Location: Ithaca, NY
Birthdate: 05-30-1975
Year of Diagnosis/Onset: Diagnosed in February of 2008 with Stills Disease but very ill
since September 2006. Doctor thinks I may have had it longer.
Other diseases/health conditions: Hashimoto's Hypothyroidism
Current Medications: 15 mg prednisone 15 mg of Methotrexate, Folic Acid, 20 mg Lexapro,
25 Mg of Sinthroid (T4 for thyroid) .05 mg cytemel (T3 for thyroid), Cats Claw, Vita C, Flax seed oil,
Fish oil, Milk Thisell, Primrose oil, Calcium with Vita D and magnesium, Muti Vita. B complex.
5-HTP for sleep. Vicodine for pain as needed.
Occupation: Private Nanny for last 5 years. Also part time private housekeeper before getting very ill
Family: Married to very supportive Husband and best friend: Russell Fultz.
Children: Roman 7. Casey 11, and Dustin 15
3 siblings, 2 sisters 1 brother. I am the oldest of the 4
I Love to spend time with family.
Favorite Activities: home decor, Flower gardening, House plants, Scrap booking,
Water aerobics at the YMCA with my buddies, and very into trying to stay pain free!
Message:
I Started with a stiff neck and sore throat, then all over joint pain and high fevers.
2 months later, started rash on neck and chest then started on upper arms. Heart palps then started, weak and unable to work.
I'm now getting relief on prednisone and Methotrexate.
I have a great network of friends on StillsDisease.org
THANK YOU ALL FOR YOUR ON GOING SUPPORT!
–Heather Ann Fultz
