Member Profiles

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Braden J. Allen

Email: TYAllen91@aol.com

Location: Longview TX

Birthdate: 9-25-98

Date of Onset/Diagnosis: In theory, onset was at birth. First bad episode was 9-20-99. Didn’t sit-up until he was 10 months or walk until he was 16 months.

Other Health Conditions: Preemie with some bronchial difficulties.

Surgeries due to Still’s: None

Current Meds: Motrin – 1 tsp/6 hours, round the clock. Foot and ankle massages, love and devotion.

Occupation: toddler

Family: Daddy, Momma, & sister, Taryn (6-11-96)

Favorite Activities: Used to not do anything but lay on the floor and cry, howl, or scream. Since treatments have started in March 2000, he plays and laughs. His gait is still not normal, but at least he’s walking now!


Amanda Yee

Email: yee.44@osu.edu

Location: Columbus, OH

Birthdate: 09-17-77

Year of Diagnosis or Onset: 98

Other diseases/health problems: None

Surgeries as a result of Still’s: None

Current Medications: None

Occupation: student, activist, consultant and soon to be peace corps volunteer (i hope)

Family: single, no pets, oldest of five

Hobbies or Favorite Activities: reading, walking, ballet, yoga, painting, drawing, swimming, and dancing…oh yeah.. and solving world food problems (just kidding)


Betsy Ashley

Email: ashbet@northnet.org

Location: Norwood.New York

Birthdate: March 24th

Year of Diagnosis or Onset: Onset 1993 diagnosis- March 1999

Other diseases/health problems: None

Surgeries as a result of Still’s: None

Current Medications: Celebrex, aspirin ,estrogen, Pepcid

Occupation: Hairdresser for 31 yrs- Beauty shop in my home

Family: Married- husband Ken-postmaster Colton Four children Two daughters Angela and Amy, both married and two sons- Keith and Bob – six beautiful granddaughters and another grand baby on the way- pets- yes Lisha- a Shihtzu dog, three cats- Tiffany, Peaches and Manna

Favorite Activities: Hobbies are cooking- love new recipes, crocheting and making teddy bears from old materials such as fur coats and jackets belonging to relatives. Also we have a RV and enjoy going in that.


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