Chairman of the Board-Assistant Treasurer
East Coast Office:
1123 S. Kimbrel Ave.
Panama City, FL 32404-9007
Patricia L. Boerner
Post Office Box 760
Idyllwild, CA 92549-0760 USA
Home Office Tel:
CA (951) 659-8393 Please leave message
Patricia L. Boerner
Background of the foundation and support networks
Thomas Kufahl and a handful of others found each other on the internet in 1997. As they grew, the group moved to a Yahoo site. By the year 2000 more were coming together daily sharing knowledge and support so Robert ‘Bob’ Himes and his wife, Carole, started the paperwork for the incorporation and non-profit status of the International Still’s Disease Foundation. Incorporation and 501(c)(3) status was officially granted in June of 2001 for the International Still’s Disease Foundation, Inc. The original monies used to set up the foundation had been loaned but were subsequently donated. Some founding members of the original support group were voted as the first board of directors and the foundation began it’s charitable work.
The goals of the foundation have been to help others and to spread knowledge and awareness about Still’s disease throughout the world. The Mission Statement is found here on our site.
The foundation now hosts a varied support network. The original Yahoo group expanded to a closed Facebook support group named the International Still’s Disease Group and the public Twitter page is named Still’sAndNews. The foundation has a closed Discussion Board here at this site and a public Chat room that is available for use 24/7. In 2001 we began hosting Still’s conferences. The foundation also participates in several programs and projects such as Needy Meds where patients can visit the Still’s page and find companies that assist with low cost or free medications used to treat Still’s disease and it’s associated illnesses. We also participate in the yearly World Autoimmune Arthritis Day event. The foundation has been a major contributor in the Early Onset Symptoms Patient Study, and facilitated the a 4 part Still’s disease video series by Dr. John J. Cush, which can be viewed here at this website.
We are excited about the future with projects we have planned as well as partnering with other organizations to continue the cause for awareness and support of Still’s and other autoimmune diseases for patients, families, professionals and the public.
Everyone that has ever worked with the International Still’s Disease Foundation has done so on an all-volunteer basis. Many have donated not only time and support but financially as well.
We, here at the foundation, think of others as family and wish thank every one for their love, support and sharing throughout the years.
We thank you again and wish everyone well.
Robert, Bob, Himes, Patricia L., Melly, Boerner and the Still’s Family Staff